For the fastest response and interaction with others - post here. (Requires you to register) http://hepcnet.net/boards/phorum/list.php?3 Thu, 09 Sep 2010 09:18:00 -0700 Phorum 5.2.13 http://hepcnet.net/boards/phorum/read.php?3,3578,3578#msg-3578 http://hepcnet.net/boards/phorum/read.php?3,3578,3578#msg-3578 Tommy is willing to take her home and care for her no matter what shape she is in!!
scat]]> scat Open Discussion Thu, 09 Sep 2010 06:44:27 -0700 http://hepcnet.net/boards/phorum/read.php?3,3574,3574#msg-3574 http://hepcnet.net/boards/phorum/read.php?3,3574,3574#msg-3574

Finaly a remote for just the man of the house!!! LOL
:jester Out!!!]]> T-Man Open Discussion Thu, 09 Sep 2010 01:43:27 -0700 http://hepcnet.net/boards/phorum/read.php?3,3559,3559#msg-3559 http://hepcnet.net/boards/phorum/read.php?3,3559,3559#msg-3559 scat]]> scat Open Discussion Thu, 09 Sep 2010 08:45:38 -0700 http://hepcnet.net/boards/phorum/read.php?3,3557,3557#msg-3557 http://hepcnet.net/boards/phorum/read.php?3,3557,3557#msg-3557 Poll: If you were me with 4/4 would you try infergeon?

who take my poll]]> snowmane Open Discussion Wed, 08 Sep 2010 18:57:29 -0700 http://hepcnet.net/boards/phorum/read.php?3,3556,3556#msg-3556 http://hepcnet.net/boards/phorum/read.php?3,3556,3556#msg-3556 snowmane Open Discussion Wed, 08 Sep 2010 19:00:30 -0700 http://hepcnet.net/boards/phorum/read.php?3,3541,3541#msg-3541 http://hepcnet.net/boards/phorum/read.php?3,3541,3541#msg-3541 This sounds very very serious folks, so please pray to your god to help our sister whom so many of us love so dearly.
As Tommy continues to call me, I will update here her condition.
Please please pray for our dear dear sister, I know I am not handling this well, as I'm sure many here won't....please pray!!
scat]]> scat Open Discussion Wed, 08 Sep 2010 14:53:16 -0700 http://hepcnet.net/boards/phorum/read.php?3,3539,3539#msg-3539 http://hepcnet.net/boards/phorum/read.php?3,3539,3539#msg-3539 rocky Open Discussion Thu, 09 Sep 2010 08:48:47 -0700 http://hepcnet.net/boards/phorum/read.php?3,3537,3537#msg-3537 http://hepcnet.net/boards/phorum/read.php?3,3537,3537#msg-3537 "Don't let your mind bully your body into believing it must carry the burden of its worries."

:jester Out!!!]]> T-Man Open Discussion Wed, 08 Sep 2010 01:29:38 -0700 http://hepcnet.net/boards/phorum/read.php?3,3534,3534#msg-3534 http://hepcnet.net/boards/phorum/read.php?3,3534,3534#msg-3534
Liver still functioning normally. Normal portal flow etc. Spleen, upper end of normal in size, and no nodular malformations on liver. Gall bladder still polyped but with same amount as ever.

Blood work not so great, but nothing to worry about really, in the big picture of things. ALT a bit down to 191....GGT up by one over normal..WBC quite low, neutrophils tipping over the normal/low range and for the first time, my lymphocytes were low. I succumbed to the much insisted upon Flu jab, as I said I would if the neutrophils dropped low enough to warrant it, and because I am full time studying at a school full of plague carrying young people ... ;) .........I'd kick my own arse if I got the flu knowing the neutrophils had dropped like that. Not a fan of flu jabs...avoid them almost as much as the plague.

In general, all is once again, stable. I really thought perhaps the big travel and the full time studying would affect my condition adversely. Some things on the blood work even improved, like my AFP, dropping from 28 to 21. Stable has become the holy grail word for me. I remember once upon a time it was 'normal'.........all blood work and functions are 'normal'.......or 'cured'....aiming for a cure on tx was the holy grail once...Now, nearly 10 years down the track from tx, fibrosis and progression to cirrhosis, I am happy at the word 'stable'....IT has become the holy grail. Stable is good.

The unidentified nodules I carried on my liver for the last 4 years leading to higher monitoring by my doc, have disappeared and stayed that way. No one knows what or why they were or weren't...but as long as they are gone...I'm happier still.

So, college is big, coming up for the end of my third term and two weeks holiday. Much homework and it was a very long term this last one, and in winter too. Cirrhotic people in general do not tolerate weather extremes....The winter hurt...literally, physically hurt. We are still getting much rain and wild weather. The worse in over 15 years...flooding of rivers that were drought ridden. I think it has poured rain for the whole season, and Spring is officially here, but certainly not reflected outside. I look forward to the warmth of the sun. My study has suffered this last term as I suffered from the cold..........but I have the holidays to make up for it, and the next term will be shorter and warmer....

So all up...life is exhausting and exhilerating as per usual. Life keeps throwing up strange things in the middle of all this, but, as most heppos will attest to, you keep going. And I am astounded, at how much this one body has taken and continues to take in this one lifetime, and STILL allow me to kick personal goals. Sometimes the wheels fall off, but that's ok.......I am so grateful to still be around.

Cheers

Denise.]]> Denise Open Discussion Wed, 08 Sep 2010 14:56:21 -0700 http://hepcnet.net/boards/phorum/read.php?3,3532,3532#msg-3532 http://hepcnet.net/boards/phorum/read.php?3,3532,3532#msg-3532 sniperkitty Open Discussion Wed, 08 Sep 2010 12:31:41 -0700 http://hepcnet.net/boards/phorum/read.php?3,3529,3529#msg-3529 http://hepcnet.net/boards/phorum/read.php?3,3529,3529#msg-3529

:jester Out!!!]]> T-Man Open Discussion Tue, 07 Sep 2010 02:27:34 -0700 http://hepcnet.net/boards/phorum/read.php?3,3527,3527#msg-3527 http://hepcnet.net/boards/phorum/read.php?3,3527,3527#msg-3527 [/God give me work, till my life shall end
And life, till my work is done.
b]

:jester Out!!!]]> T-Man Open Discussion Mon, 06 Sep 2010 02:20:44 -0700 http://hepcnet.net/boards/phorum/read.php?3,3526,3526#msg-3526 http://hepcnet.net/boards/phorum/read.php?3,3526,3526#msg-3526 Went over results from San Antonio and what we do next.
My MELD score has moved up some.
He was adament about me staying on the meds for maintance. Staying true to the course and keep on doing what I've been doing the past two years. Then he looked up at me puzzled and said,"We've been together that long?"
Am trying a new drug and suppose to let him know what it does. Also changed my acid reflux meds.
Mike also asked him if there is anything we can do about the gallstones and the two hernias so I wouldn't be so miserable.
No cutting on me until liver transplant. But I feel that if I were to bleed to death...it would have been during the dentist surgeries.
And he explained that with the large amount of adema and ascites...if they made the wrong move on me, the bile (ascites@edema) could do some major damage. I don't ever want to go thru that again.
A doubleedged sword.
We are back to the hurry up and wait stage again. I'm starting to get use to it.
Asked him about starting treatment again and he said no way, I wouldn't make it.
And that was all folks.
T :fish]]> Tfish Open Discussion Wed, 08 Sep 2010 10:16:06 -0700 http://hepcnet.net/boards/phorum/read.php?3,3523,3523#msg-3523 http://hepcnet.net/boards/phorum/read.php?3,3523,3523#msg-3523

:jester Out!!!]]> T-Man Open Discussion Sun, 05 Sep 2010 01:31:39 -0700 http://hepcnet.net/boards/phorum/read.php?3,3520,3520#msg-3520 http://hepcnet.net/boards/phorum/read.php?3,3520,3520#msg-3520


:jester Out!!!]]> T-Man Open Discussion Sat, 04 Sep 2010 04:39:08 -0700 http://hepcnet.net/boards/phorum/read.php?3,3519,3519#msg-3519 http://hepcnet.net/boards/phorum/read.php?3,3519,3519#msg-3519 my wife left with my baby boy and I was left with pegatron sickness to deal with on my own. A year later and ever since I am undetectable (cured) healthier and stronger than I have ever been. I am at the top of my field in business and my son is 10. I am almost 56 now and I am so grateful to Lyric and the team of heppos for the daily support that helped me through the agony. It was a messge like this that inspired me not to quit treatment and see the light at the end of the tunnel. It was from a guy in Oregon. Slay that dragon, fight the good fight and stay together. I don't know if they have a better treatment, the ribavarin and pegulated interferon made me sick and depressed. Now I am happy, healthy and wise.

Scorpio]]> scorpio 51 Open Discussion Wed, 08 Sep 2010 02:20:06 -0700 http://hepcnet.net/boards/phorum/read.php?3,3515,3515#msg-3515 http://hepcnet.net/boards/phorum/read.php?3,3515,3515#msg-3515 RScott Open Discussion Sun, 05 Sep 2010 16:06:25 -0700 http://hepcnet.net/boards/phorum/read.php?3,3514,3514#msg-3514 http://hepcnet.net/boards/phorum/read.php?3,3514,3514#msg-3514 The Only Pills I Need!!!



:jester Out!!!]]> T-Man Open Discussion Fri, 03 Sep 2010 01:39:02 -0700 http://hepcnet.net/boards/phorum/read.php?3,3510,3510#msg-3510 http://hepcnet.net/boards/phorum/read.php?3,3510,3510#msg-3510

:jester Out!!!]]> T-Man Open Discussion Thu, 02 Sep 2010 02:17:23 -0700 http://hepcnet.net/boards/phorum/read.php?3,3508,3508#msg-3508 http://hepcnet.net/boards/phorum/read.php?3,3508,3508#msg-3508 pebbles Open Discussion Thu, 02 Sep 2010 19:27:07 -0700 http://hepcnet.net/boards/phorum/read.php?3,3505,3505#msg-3505 http://hepcnet.net/boards/phorum/read.php?3,3505,3505#msg-3505
:jester Out!!!]]> T-Man Open Discussion Wed, 01 Sep 2010 04:54:32 -0700 http://hepcnet.net/boards/phorum/read.php?3,3501,3501#msg-3501 http://hepcnet.net/boards/phorum/read.php?3,3501,3501#msg-3501
:jester Out!!!]]> T-Man Open Discussion Tue, 31 Aug 2010 02:32:43 -0700 http://hepcnet.net/boards/phorum/read.php?3,3498,3498#msg-3498 http://hepcnet.net/boards/phorum/read.php?3,3498,3498#msg-3498 I am going to get a black rasta wig (spell check please) and go on with life. Freak everyone out. So what I always do.

Now here is the problem, I have to hunt and peck for Xfaxan 550 x 2. My GI sometimes has samples. Her associate said they should call there pharmaceutical people but noooooo. My caregiver went to one of their satellite offices and scored me a 7 day supply. Then when I get home from the hospital, I start calling around and none of the offices had any. So I call the GI back and speak directly to her. She said I was ABUSING the system. LOL I told her if she was associated with these offices it was most certainly not abuse and I have NEVER been acused of abuse. My new doc, was my old one and he can't get the paramedical companies to come to Atlanta Medical.

I have severe encephalopathy it is awful. I have bones that have been broken in places I didn't even have after a bout. Not to mention talking to friends and not knowing what I have said, short term memory loss also. Funny a pill will keep from hurting myself, or become demented and live that to my children to handle.

My question here is do you guys know how to get a hold of Xifaxan. I have Rx of course and the makers of Xifaxan thought they were helping by giving everyone a card with $100.00 off co-pay. If I fill it one time I would get a 30 day supply of the magic pill, but with my part D I do not qualify.:confused

Could you guys let me know how infergeon works, will I be weirder than I already am? And is there a site where I could buy the stuff in another state or county by ordering on line.

Thanks for hanging in there with me.

Love and Light]]> snowmane Open Discussion Thu, 02 Sep 2010 19:21:40 -0700 http://hepcnet.net/boards/phorum/read.php?3,3497,3497#msg-3497 http://hepcnet.net/boards/phorum/read.php?3,3497,3497#msg-3497

:jester Out!!!]]> T-Man Open Discussion Mon, 30 Aug 2010 02:31:59 -0700 http://hepcnet.net/boards/phorum/read.php?3,3489,3489#msg-3489 http://hepcnet.net/boards/phorum/read.php?3,3489,3489#msg-3489

:jester Out!!!]]> T-Man Open Discussion Sun, 29 Aug 2010 01:59:26 -0700 http://hepcnet.net/boards/phorum/read.php?3,3485,3485#msg-3485 http://hepcnet.net/boards/phorum/read.php?3,3485,3485#msg-3485

:jester Out!!!]]> T-Man Open Discussion Sat, 28 Aug 2010 04:37:31 -0700 http://hepcnet.net/boards/phorum/read.php?3,3469,3469#msg-3469 http://hepcnet.net/boards/phorum/read.php?3,3469,3469#msg-3469 My pl have gone up to 48. And the Dr said he does not want to put me on the med Neupogen
My wbc is 2.7 and that is ok right at this time just keep going to the lab on Wed. I,m getting tierd of going 4 times a mo.]]> peaches Open Discussion Mon, 30 Aug 2010 08:39:07 -0700 http://hepcnet.net/boards/phorum/read.php?3,3466,3466#msg-3466 http://hepcnet.net/boards/phorum/read.php?3,3466,3466#msg-3466

:jester Out!!]]> T-Man Open Discussion Fri, 27 Aug 2010 02:22:37 -0700 http://hepcnet.net/boards/phorum/read.php?3,3459,3459#msg-3459 http://hepcnet.net/boards/phorum/read.php?3,3459,3459#msg-3459 Bad news is the IL28B test that they did that will show if my body is clearing on my own came back showing I am an intermediate, which translates to a 30% chance I can clear on my own. Not exactly the numbers I was hoping for.
The doc doesn't want to wait much longer, so I am giving blood next Saturday and if I have not cleared by then, then I am going to begin treatments asap regardless of the numbers.
Hope all is well with everyone.
Eric]]> onedabred Open Discussion Fri, 27 Aug 2010 11:07:38 -0700 http://hepcnet.net/boards/phorum/read.php?3,3454,3454#msg-3454 http://hepcnet.net/boards/phorum/read.php?3,3454,3454#msg-3454

:jester Out!!!]]> T-Man Open Discussion Thu, 26 Aug 2010 08:39:11 -0700