For tips from others who have lived with Hepatitis C for many years, or if you are newly diagnosed with a lot of quesions http://hepcnet.net/boards/phorum/list.php?6 Thu, 09 Sep 2010 09:10:40 -0700 Phorum 5.2.13 http://hepcnet.net/boards/phorum/read.php?6,1763,1763#msg-1763 http://hepcnet.net/boards/phorum/read.php?6,1763,1763#msg-1763
1. Fatigue 23. Sweating
2. Joint pain 24.Hot Flashes
3. Weakness 25.Cold Flashes
4. Tiredness 26. Eyesight Problems
5. Muscle Pain 27.Sensitivity to heat
6. Skin problem 28.Sensitivity to Cold
7. Memory Loss 29. Vertigo
8. Mental Confusion 30. Dizziness
9. Dry 31. Coordination
10. Depression 32.Flu Like Symptoms
11. Anxiety 33.Headaches
12. Itchy 34. Urinary Problems
13. Irratability 35.Urinary Odor

14. Indigestion 36.Urinary coloration
15. Rash 37. Fever
16. Nausea 38. Slow Healing
17. Vomiting 39. Slow Recovery
18.Spots 40. Suseptibility to Illness
19. Gas 41. Suseptibility to Flu
20. Sleep Disturbances 42. Weight Gain
21. Pain or discomfort in Abdomen 43. Weight loss
22. Chills 44. Water Retention


This list does not mean that you will have all these symptoms now or in the future. But the list of known symptoms will validate your feelings, if you have one or more that you are not LOONEY and have these problems whichever they may be.
Take the first one Fatigue, There is no way possible for anyone not feeling it in understanding the overwhelming state it may be.
There are people with severe Hep C, that feel great and show no symptoms of the disease. It seems that the counts on the Liver Blood Tests, do not determine the possible symptoms which makes it very hard to know where you are at. In other diseases we look for symptoms to worsen to know that the disease is progressing.
This is very frustrating for the patient and also for the medical Doctors. This is where the suppoert groups come in because they are just like you struggling to find a goal of feeling better.]]> Koreen A Heppo's Manual Sun, 04 Jul 2010 14:16:28 -0700 http://hepcnet.net/boards/phorum/read.php?6,1737,1737#msg-1737 http://hepcnet.net/boards/phorum/read.php?6,1737,1737#msg-1737 that result from my disease?
10. What medications are available to control the disease? Do you ever conduct or can you refer me to someone
who performs experimental or research trials?
11. What are the risks and benifits of taking the medication at this point in my illness?
12. If I am unable to tolerate this medication or if it is uneffective, are alternative therapies available?
13 How will I know if I am responding to treatment, and how long will I need treatment?
14. Is transplant an alternative at my stage of the illness? would you or when would you recommend it?
15. Are there diet changes or other measures that I can take to lessen the effects of the disease?
16. How often do I need to be seen by a doctor?
17. How do I contact you in an emergency?
18. Can I do any home monitoring of my illnessthat might reduce the need for office visits?
19. Will I beable to continue working?
20. Can I expect to have many sick days?
21. Will this illness affect my ability to obtain life or health insurance?
22. Ask questions about the specific hobbies, sports, family and social activities that the disease
may have an effect on.
23. Will the drugs I am taking interact withother medications or impair my ability to have sex?
24. What are Your recommendations regarding alcohol, smoking, aspirin/tylenol/motrin, other
prescription or non prescription drugs?
25. Will the illness or the treatment interfere with my ability to have children?
26. Will the disease or the treatment be disfiguring? (Weight gain/loss, hair loss, ect. )]]> Koreen A Heppo's Manual Tue, 11 May 2010 13:42:16 -0700 http://hepcnet.net/boards/phorum/read.php?6,1719,1719#msg-1719 http://hepcnet.net/boards/phorum/read.php?6,1719,1719#msg-1719 SOME QUESTIONS TO ASK YOUR DR:


1. Is it possible the diagnosis is incorrect? It does happen occasionally
2. Are there any tests (or additional tests) available to confirm the diagnosis or to show
the severity of of the illnessÉ
3. What organs of my body are involved and in what way. Will the damage to these organs
be progressive.Be sure to ask the usual time course over which this occurs. Ask for drawings
and down to earth terms to help you better understand what is going on with your body.
4.What other organs of my body can I expect to become involved due to the illness.
5. What are the possible ways I could have gotten this illness.
6. What are the possibilities of my passing this illness on toothers,and in what ways. Should I
worry about my family catching it, what about sexual transmission. How can I minimize the risk to others.
7. What complications am I at risk for and at what stage of the disease.
8. What symptoms or change in symptoms should I be concerned about. You need to gain some
perspective on your illness and not become obsessed with every little ache and pain or change in symptoms.
Find out which symptoms are important, and which you need to watch out for.


More Questions on what to ask to Follow]]> Koreen A Heppo's Manual Tue, 11 May 2010 09:18:34 -0700 http://hepcnet.net/boards/phorum/read.php?6,1718,1718#msg-1718 http://hepcnet.net/boards/phorum/read.php?6,1718,1718#msg-1718 2. When you have BLOOD TEST or LIVER TESTS ask for a copyof the results from the dr. and keep in your binder.
3. Usually they do liver test (blood test) about every 3 months.
4. Have a Hep B test, if it is negative start the vacvine right away, if your dr. says you don't need it, then go to a health unit and do it.
5. Remember to tell anyonethat does a service on you that you have Hep C so that they are aware of it and take precautions...Dentist,
Denturist, Hairdresser, Barber, Lab techs, anyone who may be in blood to blood contact with you.
6. Find out as much as you can about your condition with this disease, you have it for life, so don't ignore it because it won't get
better or go away on its own.
7. The reason for this Binder is if you have to see another dr. you then have the test results right there, also you can keep track
of your ups and downs.
8. Always take a support person with you to your appointments.this way if you miss some imformation they will hear it.
9. Also take a pen and paper with you so you can take notes so you don't miss anything.]]> Koreen A Heppo's Manual Tue, 11 May 2010 08:44:52 -0700 http://hepcnet.net/boards/phorum/read.php?6,120,120#msg-120 http://hepcnet.net/boards/phorum/read.php?6,120,120#msg-120
For those that remember when it was started before... can you re-post what Viv said what belonged in here? I set the board description to what she had it set it.]]> seok A Heppo's Manual Tue, 11 May 2010 08:22:56 -0700