is Aubrey's mom, Kathy. Aub and I would like to tell her
story so that it may help other kids and/or their families
who may read this.
was born in 1990, she was a twin, and was 2 months early.
Both her and her brother, Austin, had severe birth defects.
Aub's were with her heart and she survived. Austin was born
without kidneys, he didn't.
Aub was a week old she underwent her first open heart surgery.
It was during a transfusion from this that she was infected
with HepC. She has had another surgery, did great recovering
from that one and we only worried about her heart and her
lungs (she has asthma) right up until March of 2000. That
was when we got a registered letter saying she was exposed
to the virus when she was a week old and the hospital wanted
to test her to see if she was infected.
this time we never knew there was such a thing as hepatitis
C. In the following months we had a heck of an education.
If it wasn't for the people here we would have been basket
cases. Aub is in stage 2 liver disease. We have no idea
how fast the disease is progressing in her because her 1st
biopsy, which was supposed to be a baseline to compare later
ones to, showed she was already in stage 2.
has been a real trooper through all of this, she's taught
the rest of us in the family a lot in the way of courage.
She's always ready to help someone else. I'm not saying
this just because she's my daughter, it's the way she is.
reading this has a child infected with hepc, and you would
like to talk about how you feel, what to expect, or just
to vent your frustrations, please feel free to contact us
and Aub's is firstname.lastname@example.org.
We will be glad to talk with you, and help if we can.
and Kathy Ogin
Aub began tx
in August of 2001, Intron A. At 3 months she was undetectable.
Because of neurological side effects we decided to stop
tx after 5 months instead of risking permanent damage. The
ticks, headaches and dizziness are all gone now, but we
found out this week the virus isn't. Aub still wants to
fight this dragon, more than ever! She's an inspiration
to the family, she's been through so much and never really
complains. When the doctor called with the PCR results he
asked me what I was going to tell Aub. I told him the truth.
After the initial shock wore off, she said she was normal
before she knew she had this, she was normal while it was
gone for that short while, and she is normal now! Like I
said, she's a true inspiration to us.
Love to all,