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Denise's Story

"Lady Nokomis"

Denise

A Thank you to all that stood by me,

This is to let all my family, friends and love one know whats going on in my life. I just want to let everyone know I decided to go off treatment. The medicine they had me on started playing with my head. It was making me a depressed, emotional, psycho. I stopped seeing color, hearing music, and generally stopped being a positive person. It took my life away from me. I was not smiling, laughing or enjoying life, not to mention the physical pain it was putting me through. The finally straw came when I didn't get out of bed for 2 days and all I could think about was how I could get my fat ass in a Xanax bottle and never come out. This was not me and I knew I had to do something about it. I don't feel like a failure, I believe I am a horrible warning of what can happen on treatment.

No more Interferon, No more Ribavirin, No more Zoloft or Paxil, and I cut the use of my Xanax down by over half. Can't take my Xanax away from me completely, but not because of the Hepatitis, but because I'm a married women with 4 kids and a husband. Wait a minute does that count for 5 kids. LOL!

I made it 27 weeks of the 48 weeks my Doctor's wanted me to do, not too bad. I had blood work done a week before I stopped and I will get blood work again 4 weeks after I stopped. To see if the Treatment I did worked. The funny thing about this disease is right now there really isn't a Cure. We can only hope we put it on the back burner and hope we can keep it maintained. So with that in mind, I made another decision. When my blood work does come in I don't think I want to know. My Doctors will have the information and that's all that is important. In my mind and heart I want to believe it worked. That's enough for me. When my Doctors feel that my mind can no longer fight this Dragon they will let me know. At that time I will decided what to do. Please always remember one thing. If this disease does take my life, do not cry for me. Do not look at me as a defeated soul.

Remember me as a fighter that could only fight the best way she knew how. Guess its time for the Black Sheep to make her return. Think the world is ready for it? Ding! Ding! Round 2! Its taken me a few weeks to withdrawal from all this medicine, but I'm starting to feel good and as my husband says " She's back to kicking ass and taken names."

I also decided to put my Hepatitis ambitions in one direction. Since I'm getting my strength back and since I am the original Mouth of the South! Hold tight Washington here I come. I promise you every government official will know my name and the word Hepatitis. I will fight for funds to find a Cure, to get people medical care when they need it and anything that has to do with Hepatitis individuals rights. My home phone and email address will always be open for questions, concern and support for anyone that may need it.

For those of you that stood by me for the last year(you know who you are), I stand up and take my hat off to you. Thank you for hearing my cries and listening, holding me when I needed it, Giving me support when I needed it, running for my medicine, taken me to doctors, stopped by to see if I was alright, and over all just being there. I will always hold you close to heart.

A Special Thanks To:

My Doctors for taking all my calls and not locking me up!

My Friend and Sister Elaine for all the calls even if they were from a bath tub!

My Friend and Sister Cari for being there for me every step of the way. This shots for you kiddo!

My Friend and Sister Pam for always standing with me when the world was against me!

My Son for having to grow up too fast. But never stopped believing in me!

And last but not least my favorite Ass-hole, my husband. Put you though alot baby!

I will close for now, Talk to everyone soon. Oh and by the way I see color again and yes I hear music again like I'm 15 years old hearing Led Zeppelins, Stairway to Heaven for the millionth time! :) And this time I'm hearing it Sober! LOL!

All my Love, Denise (LadyNokomis)

Thunder2@digitalusa.net

http://clubs.yahoo.com/clubs/hepatitiscsurvivors

"Nature Coast Hepatitis C Coalition"
Our goal is to inform our community & government with Hepatitis C Awareness, Advocacy, Education, Support & Friendship!

 

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    Page last updated: March 7, 2003


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