Here is my experience.
In the wee hours of March 11, 1981, my placenta previa abrupted
and I was only 32 weeks along in my pregnancy. That's about
2 mos. early. By the time I made it to the doctor, I had lost
massive amounts of blood. So much blood that all of my clotting
factors were nonexistent. My daughter was born via caesarian
section and rushed by airflite to a neonatal intensive care
unit in another hospital. I was given the Last Rites (at the
age of 21) and was laying in a recovery room where it was
pretty evident I would ultimately bleed to death. After trying
heroic efforts to combine platelets/plasma so that I would
stop bleeding, they placed a catheter into my neck artery
and began pumping blood directly to my heart. All along, I
never really felt I would die and I didn't! Since that time,
my liver enzymes have always been high but no one knew why
and it was something I just thought was normal for me.
Like many of you,
in 2000, I donated (or should I say, tried to donate) blood
and received "the letter." The irony is that beginning
in 1983 or so, the hospital had contacted me about being tested
for HIV as they had discovered that disease and were contacting
all patients who received blood to get tested. I was pretty
nervous about that but each time the test came back negative.
After ten years, I thought I was in the clear.
letter after my blood donation changed my life. I have since
learned that not only am I positive for HepC but so is my
16 year old son who was born in 1985. To be honest, news of
my son's condition hit me much harder than my own. He has
had a biopsy and has no liver damage. That is just great.
We had our biopsies on the same day and I made a deal with
God that I would take whatever negative results gladly if
only he would spare my son. Well, I think He took my offer
to heart as my biopsy was a complete failure-they hit the
wrong organ and eventually, I ended up on Demerol with doctors
apologizing profusely. The second biopsy for me was accomplished
with all of the bells and whistles and went relatively well-inside
Today, I am on
the Pegasys combination treatment and it is kicking my butt
on a daily basis. Since the success rate is so low, I sometimes
wonder if it is worth it but at least, it's a shot.
When I think back
on the day my daughter was born, I know there were no options
but to perform transfusions or I would have died. Still, it
would be nice to wake up sometimes and feel like my old self.
Maybe that's too much to ask but I am not ready to accept
that this is my fate forever.
Thanks for reading.
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