just found this support group, been trying for 4 years to
find a group like this. Its a really life giving to be able
to connect on a reality that I cannot connect with to my family
and friends without scaring them.
some ways I am afraid to communicate regarding my disease
as I feel it might make it more real and in other ways its
better to confront it and not run away from it.
diagnosed in 1996 May because I had to go to the hospital
to have my stomach drained. Have two sons Dylan and Jonathan,
23 and 16, living with me my only family whom i love dearly,
we are the three musketeers.
in a lot of pain usually not always because of the hep c
but because of spinal pain, pain med's make my liver hurt,
only way to not to hurt is not to move, not possible for
me to not move.
docs at USC want to redo my spinal fusion, take bone from
my hip put it where there is no bone in my back and add
more screws afraid this will really traumatize my liver
and don't know what to do.
in Tujunga, California outside of Los Angeles and am currently
not working, on welfare. I worked for 25 years last job
earning 33k a year, trying to get social security disability
for 4th time!
51, 4'8" tall, polish and Irish father dead 49 years ago,
mother dead in 70s brother dead, lived in foster home until
the age of 17. Anyway, I live a pretty simply life in the
wait to get more connected with this group and help as much
as possible. Don't know how my liver is doing will find
out in couple of months, the hmo i go to does not offer
any kind of programs for liver at all.
through all the emails I will get a lot of info and use
it to talk to the docs and find a good hmo.
mars for short