HepCnet Logo, Hepatitis C information and support, hep c information, hepatitis c message boards chat support and informationHepatitis C resources and support hepcnet, abigsam and lyric hepatitis c information and support Make a Donation »  
 
Main Page | About HepCnet | Contact Info
Hepatitis C
F.A.Q.
Viral Hepatitis C - Frequently Asked Questions
Nutrition & Hep C
Nutrition and Diet Recommendations for people with Chronic Hepatitis C
Nutrition & Cirrhosis
Nutrition information for people with Cirrhosis
Drugs & Liver Damage
Drugs that may cause liver dysfunction or damage
Hepatitis C Tests
Serologic Tests Used to Diagnose Hepatitis C
Scoring/Staging Hepatitis C & Cirrhosis
Scoring Systems for Staging of Chronic Hepatitis and Cirrhosis
Message Boards
Open Discussion
Treatments & Studies
Heppo Friends & Fun
HepCnet Chat
aBigSam and Lyric's
Hep C Support Chat
Member Stories
Read members stories about how Hepatitis C has affected their lives

Photo Album

Pictures of some of our members
Artistic Expressions
Various forms of art submitted by our members
News & Info
Heppo Fest information and other News
Heppo
Recipe Exchange
Recipes submitted by HepCnet members
Sign Guestbook
View Guestbook
Make an entry to our Guestbook and let us know that you were here!
Related Links
Other sites that offer information and support about Hepatitis C
Link to Us!
How to Link your Web Site to HepCnet
Web Rings & Awards
Web rings that HepCnet has joined and awards received
The Hep C Stuff Archive
The official repository for every member of HepCnet to store info and links
Top    Back

Orphan Annie's Story

Hi There-

Well, where to begin?

I became infected with Hep C back in 1980 during a "tattoo party" at
my house. Everybody (7 of us) lined up to get a tattoo from a guy with a
handmade tattoo gun.

I was finally diagnosed in April 2001, after years and years of going
from doctor to doctor, asking them why I always felt so tired and dizzy.
Most of them said I was a hypochondriac (?) When I was finally diagnosed, in a funny way, I was happy. Happy to know I wasn't crazy! I got back in touch with the people at the party and found out that 6 out of
7 of us did have Hep C, we all had the same genotype (1A), but that 3 of us had already died from it.

Luckily, my biopsy showed only grade/stage 1. After about 8 months of
research and 3 different opinions, I began my journey with PEG-Intron
(Rebatron combo). Unfortunately, this lead to another of the worst decisions of my life (following the tattoo).

I wasn't having fun, but I was tolerating the treatment fairly well -
for about 4 months. Then, one morning I woke up andmy right hand was stuck in some weird cramp. My daughters (3 of them, ages13, 16, and 24 - thankfully all HCV negative) and I made a big joke about it,
saying "I have the CLAW". Well, within a few hours, it was no longer a joke! Within about 2-3 days, my entire body was painfully contorted with severe muscle contractions. My arms and legs (hands and feet) were swollen and red and throbbing, and I could not open my hands, lift my arms, bend my knees, or open my jaw! I ended up in the hospital twice. My SED rate (rate of inflammation, normally 0-20) was 140!

All the doctors agreed that this was a severe adverse reaction to the
interferon, but they also all agreed that they didn't have the slightest clue about what to do about it.

Well, it has been close to a year now. I have been in physical therapy 3x per week for the entire time. I can almost walk now. I still cannot lift my arms over my head. I can drive again now, but I really can't write. I can't hold my grandson. I had been a production typist/computer operator for
over 25 years - now this took me 3 days to write. I have had an EMG/nerve & muscle conduction test which shows damage to all my
muscles and nerves. I had a muscle biopsy which shows "neurogenic
rearrangement". They say this is permanent. I have been told that this is a very rare reaction, but I don't know. They said if they told people about this, it might scare off people that could truly benefit!!

I am now on a mission to make sure people are100% informed when they make the decision to go through therapy.
It is my hope that we can all live our lives with joy & purpose!

God bless you all!

Agianni7@AOL.com

 


Click here to return to the member stories list

 

 

 

    Page last updated: July 7, 2003


Home  |  About HepCnet  |  Contact Information
Hep C FAQ  |  Nutrition & Hep C |  Nutrition & Cirrhosis
Drugs & Liver Damage  |  Hep C Tests  | Scoring/Staging Hepatitis C & Cirrhosis
HepCnet Message Boards  |  HepCnet Chat  |  Artistic Expressions  |  Member Stories  
Photo Album  |  News & Info  |  Heppo Recipe Exchange  |  Sign Guestbook  |  View Guestbook
The Hep C Stuff Archives  |  Related Links  |  Web Rings & Awards  |  Link to HepCnet!

Copyright 2000, 2001, 2002. 2003 HepCnet.net. All rights reserved

Site Design by Wolf Web Publications.